debora-bora

life at a glimpse...

Wednesday, December 30, 2009

The Process

12:27 p.m., two weeks later.

Two weeks post-surgery. Two weeks of adjusting to my new body. Two weeks and barely breached the outside world.

I kept it together leading up to the surgery. Maybe a little "too well." It's really not normal not to cry like I don't. It's not really a good thing. It doesn't make me stronger. I always realize this after the fact - not while I'm holding things in and together.

But I'll tell you...Going through brain surgery is scary. I had a moment or two in the hospital, the first day after my surgery when I was slightly more cognate, when I felt really close to death. I had the awareness that if my brain reacted poorly to this surgery, it could swell and I could be forever changed as an individual. And so I lay very still and tried to concentrate on being present, and aware, and normal.

My body is tired. I sleep a lot, once I'm able to fall asleep. I dream very involved and tiring dreams, and attribute this to the strong medication I'm still taking. I feel like I'm in a half-dizzy state pretty much all the time - on or off the medication. I know this because I went without any pain pills until mid-afternoon yesterday (not intentionally), and was walking around out in the world. I do the old-lady shuffle when I do walk, and bending over is not on my list of things to do right now.

I went out in the world yesterday and the day before. Just to do little things. To buy myself a fancy face-powder compact at Macy's. Just because. I got some thank you cards for the great people that took care of me in the ICU and on the 3rd Floor Surgical Ward. I went to the grocery store and putzed around with a mini-cart that I could lean on, while Alex got my prescription filled.

I am not a pain-meds person. But, if I don't take them, my head hurts a lot. Kind of like being in a vice and having a hang-over at the same time. Not that I'd know much about being in vices (I have no memory of the halo that crunched my skull into position during surgery, and left me with several head wounds - three of which required staples)...The hangover thing, well, let's just say I've had my share.

I am tired. I think I will work on making a new purse. I can handle small, creative tasks. I can handle doing some reading at night. I can handle the brain-sucking T.V. Don't worry - I won't give up much of my white matter - I've had to work too hard lately to take care of it.

All for now,
Hope you are well.
I am fine. I will continue healing. It is a slower process than I'd like, and I hate not being able to
do things around here (having to put the "Control" part of my being on hold), but I just have to allow the process to unfold as it will.

Best,
Deborah

Wednesday, December 23, 2009

12:54 Wednesday Morning

I am up. Could be the Oxycodone and steroids I'm on - but I thought they were supposed to make me sleepy? Or maybe it's just the Oxycodone that makes you sleepy and the steroids that can hype you up - but either way, I'm up...With the neighbors' cat and some Chamomile tea. The cat actually being as much our cat these days as theirs, as we have had discussions as to such and so it's all in-the-know and over the table and on the books and really quite kosher. His name is "Happy Flower" because he was named by a very sweet six year old. I just call him "Meow Meow" or "Outdoor Kitty" when I'm referring to him (which is becoming less and less a good name for him as he is more and more an indoor kitty at our residence these days).

I could also be awake due to the fact that I must sleep at an annoying degree of angle which if you looked at me from the front would appear to be an obtuse angle. Which brings up the singular item that I would keep from my hospital stay since this past Friday, which would be the button-controlled bed.

Not the thin, slightly crunchy sheets or the "blankets" which come in two varieties: too short, thin and oddly textured - or - warmed, too short, thin and oddly textured. Not the pillows which were obviously designed for people whom have no necks; any half-respecting health-care professional knows that you need good support and comfort in order to cultivate descent sleep. However, since you are surrounded by many of these health-care professionals, even a brain-surgeon to boot - you have to believe that there must be some very logical system to the pillow-to-patient ratio, as well as the ratio of filling-to-pillow cases. I'm sure once the heavy drugs have worn off I will be blessed with these insights, and have a very clear understanding as to why having four uncomfortable pillows in my bed those three nights were actually a benefit to my health, and were not actually donated to the hospital by my insurance company in a ploy to get me the hell out of there as fast as humanly possible. At least here, in the "comfort" of my own home, with approximately the same pillow-to-patient ratio, I can chose different thicknesses and shapes of pillows. I know I'd be perfectly content if I could just hit the "UP" or "DOWN" button on the side of my bed to get that elusive angle just right.

In 39 minutes I have to take two more of the Oxycodones. And, if I am smart, and don't want any nausea, I will take these with a couple of crackers and a lot of water. AND, if I am really, really smart, I will take these two pills with some prunes or a stool softener if I want to poop again before Christmas. Gosh, that'd be a good holiday song......"All I Want For Christmas in My...."

I'm trying to think of the next worst thing about being in the hospital as I've just experienced it. I mean, the food is a given. Sure, they make jokes, and it seems so cliche' - but REALLY people? I will say that the meats that were lain before me were warm. And were probably a grade up from what I feed Outdoor Kitty, but do you really have to put some sauce on it? I mean, how DO you make a sauce that has a negative taste on the taste scale??! I can see flecks of things that look like they might be herbs or something...Enough said. Stick with the broth. At least there's too much salt in it, which means you can taste it which means it's actually registering on the taste-o-meter.

No...next has got to be the suction cup circulation feet thingamajiggers*. Picture a shlurp sound somewhere in between Sleestack and a Bart Simpson armpit fart. Now, have that sound incorporated into a living breathing machine-like thing that is now hooked up to the bottom of your feet. Now, picture these *S.C.C.F.T.'s alternately flating and deflating in the above-mentioned manner and sound which I attempted to describe. NOW, try to sleep with these crazy-makers on and you've got one night of my life in the hospital. As soon as I'd start to drift into my morphine and Delotted (sp?) happy-place coma, SHLURPSUCKSHUTTERSUCKPULLPOOOOF! and that was just the right foot. All fricking night long. The next morning I politely asked if I had a choice between those and the leg-warmer circulation thingies, and was told, "Yes." Well, I believe a tear may have stained my cheek.

I understand that I just had my head sawed open and a tumor removed from my meninges and a large vein on my brain, so I'm not even going to complain about the round-the-clock care that I received every few hours - or - every time I had just tip-toed on the edge of REM sleep. I'm pretty sure there's some conspiracy going on which involves one mob or another which has the corner-market on all hospital food and blood-pressure cuffs, and is in direct and shameless cahoots with the drug, S.C.C.F.T's, pillow/bedding and insurance companies. Just a thought.

The I.V.'s and other tubes inserted into you? Do not. I repeat, DO NOT, get me started.
Let's just say that having two I.V.'s in - one in each arm of course - does not make pushing UP and DOWN buttons any easier. Does not give you the dignity to even brush your teeth as well as a toddler. Does not make getting to the toilet where you have to collect any and all cc's of your urine - any easier. Does not make adjusting the four fricking pillows that surround your upper extremities - any easier. 'Nough said.

The number one suckiest part about brain surgery - especially if they have to drill-through-your-skull-kind-of-brain-surgery - is having brain surgery. Hands down. It just really, really, sucks. Let me liken it to this, and then I'll be done:

1) Ever seen those rodeo show play-backs of the poor schmuck that got his head bashed in by a really pissed off bull or bronco? Check.

2) Ever had such a bad hang-over that you actually can't get rid of it for at least two days because you alcohol-poisoned yourself within a half-inch of your life? Check.

3) Ever get off a ride at a fair or theme park and start making your way to the lost and found to recover your center of gravity because it's surely not with you any more? Check.

Now, combine that with just the S.C.C.F.T.'s and you've got yourself a whole heap of motivation to get OUT of the hospital and IN to the comfort of your own home. Add the rest, and well, you're practically ready to moon-walk down the aisles of Fred Meyer in a celebratory dance.

I am home. I survived brain surgery. I survived my stay in the hospital for three nights and some-odd days. I had great care, and lots of love. I come back to you with less hair, but my humor in tact. I come back tired and woozy and in a lot of pain, but I am back...
And I'm happy to be here.

Thanks for your well-wishes, positive thoughts and prayers.

Love,

Deborah
(and Happy Flower)

Wednesday, December 16, 2009

Post Pre-Op Day Bath

Post pre-op day bath -

Ingredients:

1 Tub hot water
5-10 drops lavender essential oil
1 1/2 cups Epsom salts
1 good book
2 candles and a nightlight for lighting
1 small, fancyish glass half-filled with good whiskey
1 bottle good whiskey nearby in case you need a re-fill
with a Xanex chaser or pre-bath Xanex

I feel so much better.
Wasn't doing so hot after meeting with my neurosurgeon today.
Somehow I found it unsettling to hear about the chunk of skull that was
going to be sawed and flipped back in order for said surgeron to have access to my tumor.
That it's going to be a 2 - 4 hour surgery.
I have to spend the night in ICU, and two days in the hospital after.

Meanwhile, I'm rushing around trying to shop for our home and our pets and
Christmas and....
AAAAAAAAAAAaaaaaaaaaaaaaaaaaaaaaaaaaaaaghhhhhhhhhhhhhhhhhhhhhhhhh!

Hence,
the bath.

Ahhhhhhhhhhhhhhhhhhhhhhh.

Til tomorrow,
Debs

Friday, December 11, 2009

Tick Tock

One week to go!

Two nights ago I had a good cry. That's probably about it for me. I am not a crier...though I know that's not necessarily a good thing. I'll leave that for my therapist to handle...

Anyhoo. A week. Luckily, a week filled with things other than staring at some ominous count-down calendar or filling out pre-op paperwork.

I've got the Christmas work party on Saturday. Before that, I have two good friends from Seattle I get to hang with. And there's being a mom which includes but is not limited to: the friendly nudges to do homework, the endurance of many an eye-roll aimed in my general direction, snuggles. Then theres the never-ending list of pets that need attention and care. Work. Everyone knows now - which is weird. A couple of days ago one of the girls I've worked with in the Resource Room said to me, "Miss Lutz, my friend (so and so) had a friend who had to have some brain surgeries and after that she talked funny. So, you might talk funny after your surgery, too." Thank you for those words of encouragement. I tried not to laugh, and assured her that my surgery wasn't as serious, and that that wouldn't happen to me. Another boy I work with casually asked 'how my tumor was doing.' Kids are awesome.

Most days I do think I'll be just fine. Those of you who've had anesthesia know that it's kind of scary handing yourself over to people in such a way. You are totally vulnerable. I'm actually glad that I had surgery this past summer for endometriosis, because it prepared me for what going into surgery is like. The only surgery I'd had before that was when I was eleven, so the details are a bit foggy. So the handing over is the hardest part - and the rest - well that's just brain surgery.

Could things go wrong? Could I die? Of course. But you don't think that way. Or you try not to. And the chances are very slim that anything like that would happen. So, I bought myself a Ukulele book yesterday because I haven't been playing my Uke, and I'm forgetting all I learned from the week of lessons I had at Guitar Camp. I think that playing the Uke would be a nice, mellow thing to do while I'm recovering...And so you see, I'm looking ahead. My calendar doesn't stop at the 18th, it continues like everyone elses does, and I need to remind myself of that at times.

Tick tock. Tick tock.